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My Mom Has a Disease

by Lizabeth Wesely-Casella

My mom has muscular dystrophy. It’s a disease that wastes the muscles and grows increasingly more serious over time. My mom will die with a brain as sharp as a blade but a body that disintegrates on her; her diaphragm losing its strength and her heart slowly losing its ability to pump. She has lost use of the muscles in her legs and her chest and arm areas have withered to the extent that her heart sits at a funky angle. And, as you would expect, this experience has brought with it the exact measure of depression one would assume.

My mom has a disease.

I am fat. I have a big, beautiful, body that does all the things I ask it to, and for that I am very blessed. Just by virtue of the fact that I am in this mother-daughter relationship, I would be clueless if I was not aware of all the things my body can do by comparison, and thoughtless not to acknowledge the privilege of that.

I do not have a disease.

There are many things that get casually conflated when people speak about size and shape related to health. To call my shape a disease when I know what a disease truly does to the body, to the mind and to a family, perks me right up and challenges my ability to remain gracious in conversation – not because I’m ashamed of my mom or of the idea of “disease” or even disability, but because comparing my shape to something that will kill my mother hits a very raw nerve.

But what about the fact that <> my MOM conflates them? Ugh.

Mom, when she was healthy – or should I say physically able – was the same height I am and the standard bearer of what women in my family “should” look like. Never above size XYZ, I was raised to understand that deviating from that standard meant all the negative things we associate with being different than the idealized, Caucasian shape. To this day, mostly housebound, unable to walk unassisted and with all of the other issues impacting her health, she still diets. She believes that a “pouch” on the belly is something to fight against, even in a social circle of 1.

My mom was like many moms, the model of body acceptance (or lack thereof) as I was growing and did the best with what tools she had. She wanted to keep me out of harms’ way; out of the line of fire, and so she taught me to diet and strive for the thin ideal and criticize and hate anything short of that.

This isn’t a mom-bashing article, that’s just a peek into who and how she is.

She smokes like a chimney, drinks, isolates and as you would imagine, has serious bouts of depression and anxiety. Her disease, I believe, contributes significantly to that.

She would be a perfect candidate to embrace the HAES® paradigm, in my opinion, because engaging in healthy behaviors, taking care of her body as best as she can and engaging in self care rather than self denial would improve so much of her mental and physical condition. Not to build it back up, but rather to care for and use wisely, what she has.

I, on the other hand, try to engage in HAES principles whenever possible. For me, proper rest, nourishing myself, loving self-talk and mindfully enjoying movement are essential to keeping myself confident, mentally balanced and happy. I gained so much in my life when I learned about size diversity, studying HAES tenets and engaging in thankfulness rather than self-critical monologues. You see, because my mom was what I modeled, I have been in the shame spiral and depression she is now, only I felt it due to my size and the “understanding” that being fat meant I was sick.

It’s funny to view this from the external perspective and see the hypocrisy of unsolicited opinions in action. The behaviors that some people wouldn’t really mind too much if I engaged in; a little shame here, a little self loathing there, a lot of diet talk and attempts at body change, are the exact behaviors that my mom engages in, but since she’s disabled with muscular dystrophy, they fall all over themselves to assure her that’s misplaced angst. They are the same people that would call my body shape a disease and want me to make those changes, but since her disease is different, by all means she should show herself compassion. Wasting disease = compassion; fat disease = hate the weight off. These people should never put my mom’s dissolving, disabled body in the same column as my fat, healthy and happy one because I do not have a disease.

The fact that I don’t try to change my body but my mother does; that I’m healthy and my mom is not; that’s a whole big bag of unfair. The further fact that she can’t see how self-compassion, self-care and self-love have changed my life for the better and won’t engage in it herself, that’s simply a cruel truth.

I’m going to do what I do, the thing that makes some of the HAES advocates here mad at me, I’m going to continue to try to build that bridge. You see, this is where I get it, the philosophy that you MUST talk to absolutely everyone to tell them what you need or what they don’t know they don’t understand. Not everyone outside our tent is the enemy; some of them just don’t know any better. Many of them are moms.

I’m going to continue to talk to my mom, the person who thinks I’m wrong, that my body is wrong and the fact that I can and do love it is wrong. I’m going to try to bring her slowly into our tent to learn to love the body that’s been on her journey with her, no matter what state it’s in now, because if I don’t, nobody else will. And if I can disagree with my mom while maintaining compassionate and polite pressure on her, I can do it with anyone who disagrees with you and me.

My mom, I forgot to tell you, is stubborn – but I am resolute.


Lizabeth Wesely-Casella is an advocate and business consultant. Her work supports binge eating disorder (BED), impulse control disorders and Weight Stigma. As a speaker, she blends science, humor and cultural wisdom to engage her audience, creating a clear understanding of where health disconnects from body shape and that neither impact personal value.

Lizabeth specializes in the prevention of weight bias and mental health stigma through speaking writing and coalition building. She is the founder of the website and her consultancy supports business strategy and event coordination within these communities.

Lizabeth’s weight stigma advocacy has enabled her to speak at the Senate and has allowed her the honor of engaging the White House in efforts to prevent weight bias and stigma in the Let’s Move! program.

Lizabeth is a coalition builder who brings people together to create policy, often from very different viewpoints. Her skills as a respectful leader and thoughtful teammate have built a reputation among her peers as a key individual to work with in the policy arena.

Lizabeth lives in Washington DC with her loving husband and delightfully spoiled dog Noodle.

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